My new RSE role involves building a "bespoke" open source biobank management system that'll focus entirely on interoperability and standards-compliance. The goal is to eradicate the scurge of proprietary software from the Welsh NHS - and this is a fairly positive step in that direction. I'm not sure that this is the correct avenue to really detail the project, so feel free to message me if you feel like you can contribute in whatever way you see feasible.
Automation is inevitable, and unless we want to have people employed to take cans of air and spray out dust from arrays of GPUs - then we need to act now.
Rutger Bregman speaks fairly well on this.
There's a huge potential, and (imo at least) it does require cross-sector cooperation to develop standards and aggregate all available information about the patient, especially as we're generating so much of it ourselves now that doctors don't ever get to see. This can hold huge benefits for both better preventative care, but also management of chronic conditions where things like diet and exercise are so important. Get high quality lifestyle and clinical data about an entire population and you should be able to develop good quality AI to predict things far quicker than a doctor can.
Sadly I found the whole experience Kafka'esq, not helped by an unwillingness of the key sponsor (Deloitte) to venture out of their cash cow of installing EHR software. The NHS is an eminently frustrating place as the potential for change is so clear, yet actually doing it is so bloody difficult. By all means ping over details of your project privately though and if I can help at all I'd be happy to.
NHS Scotland sitting on a goldmine Bruce. Nowhere else on earth has that many unhealthy people with first world levels of healthcare and corresponding data.
It is hugely valuable, and it's almost inevitable that in the bun fight to capture that value, the individual will get shut out.
