Tough...

[Kurt.]

I don't believe they fly you out here (don't quote me on that, I've been overloaded with info ever since my diagnosis and some of it's dribbled out of my ears), just one of your kidneys. Kidney transplants are, I think, one of most commonly performed transplants worldwide so the infrastructure behind it is strong and has a long, successful history. The Mayo Clinic don't mess about; I had to go through a battery of tests before I was accepted to be on their active list; even my other specialists+GP defer to them on everything so you can assume it's the same worldwide and they only employ the cream of the crop from the medical field. There are only two other main Mayo Clinic campuses (they really are campuses, the one here has 3 separate large facilities) worldwide...the others being in Minnesota and Florida. Luckily for me, they do the most kidney transplants here, in Phoenix.

Sorry Kurt but I appreciate any effort, as you can assume.

I hear you mate, a good friend of mine,Chris, his wife is in a similar position to yourself. She was lucky enough to find a donor a while ago after a long stint of daily dialysis (she was able eventually to do this at home), unfortunately her body rejected the new kidney so she’s back in the list so it kinda hit home just how important this is.

 

[Gwladys St. Glory]

One of my friends gave his sister a kidney when she was in a bad way. It must have been about 15yrs ago now, but other than the initial phase afterwards they have both been going strong since.

Their is hope out there, just try and keep your head up ( I know that's a hard thing to do, and i doubt that i would be able to follow that advice )
But you do come across as a pretty positive person.

And you have already taken that first big step in sharing it..

Cheers for that vote of confidence.

 

[Gwladys St. Glory]

I hear you mate, a good friend of mine,Chris, his wife is in a similar position to yourself. She was lucky enough to find a donor a while ago after a long stint of daily dialysis (she was able eventually to do this at home), unfortunately her body rejected the new kidney so she’s back in the list so it kinda hit home just how important this is.

Not to pry but do you know if the kidney was from a living or deceased donor? Mayo has really been pushing the living donor method; hence my post.

 

[Piijt]

You can live for many many years on dialysis if you manage your health correctly. My wife has worked in renal for decades, she says the majority of those that die early on either get fed up going to the clinic three times a week or don’t manage to maintain a lifestyle as instructed. It’s not easy but doable. Good luck.

 

[Gwladys St. Glory]

You can live for many many years on dialysis if you manage your health correctly. My wife has worked in renal for decades, she says the majority of those that die early on either get fed up going to the clinic three times a week or don’t manage to maintain a lifestyle as instructed. It’s not easy but doable. Good luck.

They also didn't mention the age of the folks that stat came from but age is still on my side. Obviously I'd prefer to not reach the point of needing dialysis as it will dominate your life/freedom having to go for +/- 4 hours 3X a week to have it done.

 

[Littlesue]

What ever happens all the best to you. My son was born with one kidney and I've always joked that he can have mine if needs ever be.

 

[Gwladys St. Glory]

What ever happens all the best to you. My son was born with one kidney and I've always joked that he can have mine if needs ever be.

My mother's obviously devastated that she's not an eligible candidate. Because I've rarely had any medical issues, apart from being stupid, over my life I used to joke that I'd pass before her because life was like that. Serves me right.

 

[Littlesue]

My mother's obviously devastated that she's not an eligible candidate. Because I've rarely had any medical issues, apart from being stupid, over my life I used to joke that I'd pass before her because life was like that. Serves me right.

My Mom's 89 and fitter than all of us, she already outlived my older brother, me and the younger brother used to joke she would outlive us and can see it happening to be honest

 

[Gwladys St. Glory]

My Mom's 89 and fitter than all of us, she already outlived my older brother, me and the younger brother used to joke she would outlive us and can see it happening to be honest

Well, let's hope you both have many more years in you; I'll never know what it's like to lose a child and nor would I want to.

 

[Eggs]

….its so sad and life is so fickle, you really don’t know what’s around the corner especially as you get older.

In our thoughts, Matey.

 

[Kurt.]

Not to pry but do you know if the kidney was from a living or deceased donor? Mayo has really been pushing the living donor method; hence my post.

I honestly have no idea. Sorry.

 

[Kurt.]

They also didn't mention the age of the folks that stat came from but age is still on my side. Obviously I'd prefer to not reach the point of needing dialysis as it will dominate your life/freedom having to go for +/- 4 hours 3X a week to have it done.

My friends wife, she used to travel to hospital 3 times a week for a 4 hour dialysis session. Like I said earlier, she was eventually able to do this at home. It does dominate your life indeed sadly.

 

[LostLegend]

Recently started on tabs for blood pressure (after a LENGTHY lecture from my GP about changing certain lifestyle choices )

So this post hit home for me a fair bit. I’m starting on some that supposedly have less of an impact long term on your kidneys, but have to wait a few months to see if they are having the desired effect. But it is a long term worry to be sure, ‘less’ is not zero after all.

I hope you have success finding someone suitable soon!

 

[blulouie]

Heart goes out to you mate.

Hope everything comes off for you and have many more years of posting on GOT and supporting the Toffee's.

Good luck with it all

 

[Gwladys St. Glory]

Recently started on tabs for blood pressure (after a LENGTHY lecture from my GP about changing certain lifestyle choices )

So this post hit home for me a fair bit. I’m starting on some that supposedly have less of an impact long term on your kidneys, but have to wait a few months to see if they are having the desired effect. But it is a long term worry to be sure, ‘less’ is not zero after all.

I hope you have success finding someone suitable soon!

At least you're on the path mate, lifestyle changes substantially help.

The thing that sucks is high blood pressure can have no side affects or symptoms, so it's known as a silent killer (my mother/grandmothers on both sides had/have it). I had no symptoms myself and the last time it was taken by a physician (once again at UrgentCare due to an accident at work) I was told to "keep up the good work". It might have been fine at that particular moment, the equipment was faulty (I've been through 2 home monitors since my diagnosis in an effort to obtain a highly accurate home monitor as they're not created equally) or it was taken incorrectly but obviously it was high for quite to wreck my kidneys (and partially my heart) so it's good you're now working on getting yours under control. It's a very common ailment. It's possibly/probably not as bad in Europe but be prepared for how quickly your food/drink options are cut down or eliminated due to high sodium content. Now that things are at my stage I also have to monitor/limit my potassium and phosphate intake as well. No bananas, potatoes/potato-based items, tomatoes/tomato-based items, beef or dairy for me...the list goes on (and on, and on and on). I also had a bad habit since high school of not eating breakfast and little else throughout the day, so would gorge myself at dinner (not to the point of being overweight though), which stresses out your body.

I've gotten a good amount of dietary education over the last year, so if you have any questions just @ me in a post and I'll do my best to answer. As I mentioned, it's (and meds, I'm on 9 of them) helped keep my eGFR (14, if anyone's wondering) and other stats stable for over a year now so it's not nonsense.

Best of luck, going forward.