Tough...
- Thread starter Gwladys St. Glory
- Start date
Heart goes out to you mate.
Hope everything comes off for you and have many more years of posting on GOT and supporting the Toffee's.
Good luck with it all
Cheers.
So sad to hear this. I sincerely hope that you get on the mend.
Can happen to any of us and luckily you acted straight away to get checked out.
My thoughts are with you
Can happen to any of us and luckily you acted straight away to get checked out.
My thoughts are with you
BainesontoastNEW
Player Valuation: Ā£50m
Virtual bear hugs?
Hope it all works out for you mate,
Benicetoourboys
Player Valuation: Ā£10m
Sending you love. xxx
Rough situation. I feel for you. Steady on, my friend. My friend was on a transplant list for a liver, and things all worked out in the end, with a new liver from a donor. He has a renewed outlook on life and is better for it. It will work out for you.
Virtual bear hugs?
I've been complimented on my hugs in the past, probably because I've got the wingspan of a flippin' condor...so beware.
I'll be alright, I'm too stubborn to be anything else, even when I'm not technically doing ok.
My little grandson ( 6 months) was born with one kidney
...right, bear with me.
As an only child this is rough for me as most things in life have been all down to me, so I've just ploughed through. These days, unfortunately (or maybe not), my life is mainly down to others; a fact which really irritates me (you have to be an only child to understand, it's not a dig).
As some of you (like me) frequent fliers on GOT Airlines may know, either through some of my posts on here or maybe via a random DM conversation, I was diagnosed a little over a year and a half ago with Stage 4 kidney disease. I've always been active and had spent the last 18 years of my life spending a good amount of time outside, working in the famed Arizona heat, so I knew something was wrong and, one day, took myself down to Urgent Care; things obviously snowballed from there. I was at Panera the next morning getting breakfast when, as soon as sitting down in my car, the Doc called me directing me to drop everything and go to the nearest ER. Time stopped for a good 2-3 minuites that morning, staring out my car windshield on one of the typically amazing spring (for us) morning's we get here in March.
Now this morning (11/10/25), after having yet another educational Zoom class with the Mayo Clinic, this time about having a "living donor", I finally decided to make this post. You see, and I didn't know this as I only go down the self-medicating route on the internet very generally, but the mortality rate for people on dialysis is typically 5 years. In my head, I thought if push came to shove I'd just be on it until I was in a pine box but nope. Now, there are 5 stages of kidney disease (mine was caused by high blood pressure in case you're wondering, so get yours under control) and typically you're on dialysis (what is dialysis?) once you hit stage 5. Needless to say it's advantageous if I can find a living donor as kidney disease, like Carl's mesothelioma, does not get better. Your liver can heal itself with time but if your kidney's go you're on the downward spiral, hoping your diet and lifestyle change slows the progression, which it has for me (been stable ever since I got out of the hospital approx 1.5 years ago, thankfully). Hopefully you understand that I'd like to find a donor before I reach stage 5.
I've asked the question in past Zoom calls with Mayo if cross-pond donation is possible and, to my surprise, it is. My immediate family/friends members (small pool) have not been compatible and we all have an idea why (my uncle has prostate cancer for instance, a reason for instant rejection; others were lifetime smokers etc), so I have to try elsewhere and broaden the horizons, so to speak. Thus, here I am, hating myself for feeling like I'm begging. I've always been approached by people asking for money, even back when I was a young adult and didn't have any myself but still managed to find some spare change, or a few dollars as I finally started to be rewarded for working my *** off so, needless to say, I've had to put a lot of hope on the karma plate even though I'm asking for more than they were at the time; how I wish it was just a few dollars.
Via the donor program, you can usually get financial assistance for any time spent off work, travel/lodging expenses, testing etc but you won't be paid for your kidney (you can understand the trouble with that). You typically spend one full day/night at the hospital for the procedure and then you're released, with a 4-6 week recovery period depending on your work situation. The whole process is obviously completely voluntary, and can, at your behest, be completely anonymous. You can also back out at any time, up until the point of going under anesthesia, so don't feel pressured (I know, I know..."YEAH, RIGHT!"). All your info is obviously confidential, too.
I thank you all for your continued patience during this TL;DR moment; may the netiquette gods be pleased with your behaviour today.
"Wait, wait wait!", I hear you say.
"Like you, I feel overwhelmed! Where do I start?"
I'm glad you asked...
Living-donor transplantation - Overview
www.mayoclinic.org
National Kidney Registry | Facilitating Living Kidney Donation
The National Kidney Registry helps people facing kidney failure by facilitating paired kidney exchange and making living kidney donation safer and easier.www.kidneyregistry.com
I asked them what of my info I can give out and this was one of my care team members' response.
"We recommend that you do not share your MCN number in any public or online forum. If someone is interested in becoming a living donor, they can contact our transplant team directly, and we will guide them through the process without needing your personal information to be posted online.
Thank you for choosing Mayo Clinic for your care-
Isabella R.N., CCTN
*Portal messages are monitored Monday-Friday, excluding holidays, and you can expect up to a 4 day response time.
*If this is a medical emergency, call 911.
Rob
aka GSG (knobhead in private, I'm sure)
Thanks for sharing. Did you ask Mayo if you're still free for casual bumming or has everything in your life been upended?
My son didn't find out until he was 28, he had a bad lower back and went for an x ray and they told him he had just the one. He was 13 weeks prem so maybe it never developed
It's more common than you think and nobody seemed that bothered about it as long as the other one works. They told my daughter that it is about 1 in 4000 pregnancies and, similar to your son, people have gone through their whole lives without knowing.
Rita_Poon
Player Valuation: Ā£100m
Recently started on tabs for blood pressure (after a LENGTHY lecture from my GP about changing certain lifestyle choices)
So this post hit home for me a fair bit. Iām starting on some that supposedly have less of an impact long term on your kidneys, but have to wait a few months to see if they are having the desired effect. But it is a long term worry to be sure, ālessā is not zero after all.
I hope you have success finding someone suitable soon!
Ramipril, 10mg once a day.
And... this is what I get for looking...
How and when to take ramipril
NHS medicines information on dosage for ramipril, how to take it and what to do if you miss a dose or take too much.
www.nhs.uk
(no serious side effects as yet and been on top whack for some years now)(could have been walking round for a decade plus and had no idea).
It's well worth getting a base checkup once a year when you get past the invincibility of youth. Had that Christmas bandit machine they thought was broken hadn't been there (and it was being moved on a couple of days later) and I'd not had a few minutes to spare before the doc then I'd have been oblivious.
I'm surprised, if anyone was asking this , it wasn't me asking them....man card revoked!
Welcome
Join Grand Old Team to get involved in the Everton discussion. Signing up is quick, easy, and completely free.
Shop
