Epilepsy

[Chozz]

Been having strange seizures on and off over the past 5 years. I don't lose consciousness and stay completely awake when they happen. It tends to last less than 30 seconds and typically happen in clusters over the space of a few days. Might not happen again for weeks or months.

I feel them coming on by a strange deja vu sensation. Then get a tingling in my back rising over me and finishing with a lightheaded dizzyness that leaves me feeling clammy and often quite down. It also brings a churning heat in my stomach.

Been to see a neurologist last year to have an e.e.g. and mri. Awaiting the results in July. Having read up about it on the epilepsy website I would appear to have simple partial seizures (psychic - bringing a euphoric happy/sad feeling). Other partial seizures can bring a trapped nerve feeling or spasm.

Just wondering if anyone out there suffers something similar? Mine seem to be increasing lately and I'm getting pretty weary at this stage.

 

[Seathestars]

No idea mate but I wish you all the best, take it easy.

 

[Joey66]

Been having strange seizures on and off over the past 5 years. I don't lose consciousness and stay completely awake when they happen. It tends to last less than 30 seconds and typically happen in clusters over the space of a few days. Might not happen again for weeks or months.

I feel them coming on by a strange deja vu sensation. Then get a tingling in my back rising over me and finishing with a lightheaded dizzyness that leaves me feeling clammy and often quite down. It also brings a churning heat in my stomach.

Been to see a neurologist last year to have an e.e.g. and mri. Awaiting the results in July. Having read up about it on the epilepsy website I would appear to have simple partial seizures (psychic - bringing a euphoric happy/sad feeling). Other partial seizures can bring a trapped nerve feeling or spasm.

Just wondering if anyone out there suffers something similar? Mine seem to be increasing lately and I'm getting pretty weary at this stage.

Get to your GP - are you on any medication yet ?
Best of luck - medications can control them almost completely Gabapentin?

 

[Chozz]

Get to your GP - are you on any medication yet ?
Best of luck - medications can control them almost completely Gabapentin?

Been to my GP about it. He referred me to the neurologist but it's through the public health service in Ireland and it takes years. I had the first appointment with the consultant and then the subsequent scans. I'm assuming it' not life threatening if my follow up for the results is a year later! Not on any meds for it. It's only my own research that makes me believe its epilepsy. My GP and the consultant would not make any diagnosis.

 

[Simon Buttle]

Been having strange seizures on and off over the past 5 years. I don't lose consciousness and stay completely awake when they happen. It tends to last less than 30 seconds and typically happen in clusters over the space of a few days. Might not happen again for weeks or months.

I feel them coming on by a strange deja vu sensation. Then get a tingling in my back rising over me and finishing with a lightheaded dizzyness that leaves me feeling clammy and often quite down. It also brings a churning heat in my stomach.

Been to see a neurologist last year to have an e.e.g. and mri. Awaiting the results in July. Having read up about it on the epilepsy website I would appear to have simple partial seizures (psychic - bringing a euphoric happy/sad feeling). Other partial seizures can bring a trapped nerve feeling or spasm.

Just wondering if anyone out there suffers something similar? Mine seem to be increasing lately and I'm getting pretty weary at this stage.

Hi there, i have suffered with Epilepsy since the age of 14 (im in my late 30's now) when i have a seizure, i have it full blown and i go down like a sack of spuds and i have done some serious damage to myself over the years, broken wrists, knocking my teeth out, chewing through my lip, taking the skin off one side of my face all sorts tbh. What your having sounds more like short term absence's rather than a seizure although it is still classed as being epilepsy. The happening in clusters which you mention is quite normal, recently i suffered a period of sezuires over the space of about 5 weeks and now i seem to be ok again and probably (hopefully) will be ok for the next few months. You need to get your results from the hospital because whilst it is not a condition as serious as many other medical issues, it is unfortunatly something which can be very restricting in terms of how you live your life. I am not able to drive, ride a bike, im not supposed to go swimming, you are not supposed to drink alcohol, there is various arguments that say diet plays a big part in controlling seizures, but i actually have a MSc in Exercise Physiology and despite the hours of endless research i have done im not totally convinced by this side of things. The big thing for anyone being diagnosed with it is the medication, some epilepsy medication may control your seizures but they have terrible side effects, i take Sodium Valproate and Topiramte and due to the length of time taking the Valproate i have been left with my hands shaking like im a smackhead looking for his next fix, it also causes quite bad insomnia. Just make sure you ask about side effects before they put you on anything first. If you ever want know anything else please contact me, im happy to talk about it anytime.

 

[Chozz]

Hi there, i have suffered with Epilepsy since the age of 14 (im in my late 30's now) when i have a seizure, i have it full blown and i go down like a sack of spuds and i have done some serious damage to myself over the years, broken wrists, knocking my teeth out, chewing through my lip, taking the skin off one side of my face all sorts tbh. What your having sounds more like short term absence's rather than a seizure although it is still classed as being epilepsy. The happening in clusters which you mention is quite normal, recently i suffered a period of sezuires over the space of about 5 weeks and now i seem to be ok again and probably (hopefully) will be ok for the next few months. You need to get your results from the hospital because whilst it is not a condition as serious as many other medical issues, it is unfortunatly something which can be very restricting in terms of how you live your life. I am not able to drive, ride a bike, im not supposed to go swimming, you are not supposed to drink alcohol, there is various arguments that say diet plays a big part in controlling seizures, but i actually have a MSc in Exercise Physiology and despite the hours of endless research i have done im not totally convinced by this side of things. The big thing for anyone being diagnosed with it is the medication, some epilepsy medication may control your seizures but they have terrible side effects, i take Sodium Valproate and Topiramte and due to the length of time taking the Valproate i have been left with my hands shaking like im a smackhead looking for his next fix, it also causes quite bad insomnia. Just make sure you ask about side effects before they put you on anything first. If you ever want know anything else please contact me, im happy to talk about it anytime.

My cousin has the full blown stuff like yourself. And likewise has had a long list of injuries as a result. I guess I'm lucky in that sense that I never lose consciousness.

My biggest problem with it is the emotional feeling afterwards. Today for example I've had about 8 bouts and I'm exhausted & miserable. Continued episodes leave me feeling very down and borderline depressed. Like everything is not quite normal. This can last for a week or more.

 

[Simon Buttle]

My cousin has the full blown stuff like yourself. And likewise has had a long list of injuries as a result. I guess I'm lucky in that sense that I never lose consciousness.

My biggest problem with it is the emotional feeling afterwards. Today for example I've had about 8 bouts and I'm exhausted & miserable. Continued episodes leave me feeling very down and borderline depressed. Like everything is not quite normal. This can last for a week or more.

I know what you mean, i tend to have most of my seizures in the mornings, and normally i need to just sleep for the rest of the day because im just exhausted afterwards and have no energy whatsoever, there is no way i can conduct a normal day afterwards. I also understand what you are saying about feeling down and depressed about it. I have had some very dark periods during my life when things were really bad with it about 10 years ago, and i even tried to kill myself because i felt i could not see an end to the problems i was having and because it was stopping me from doing things i wanted to do. It will all come down to getting the balance right with the medication although im having a few issues with mine at the moment. If it gets too much then go and speak to someone, there are groups were you can speak to people and get proper advice on how to cope with it (not just the usual stuff from the doctor) i did and it made a huge difference for me, i got myself through it, went back to University and am much better for it, if i had'nt im not sure i would be here now tbh.

 

[Joey66]

Been to my GP about it. He referred me to the neurologist but it's through the public health service in Ireland and it takes years. I had the first appointment with the consultant and then the subsequent scans. I'm assuming it' not life threatening if my follow up for the results is a year later! Not on any meds for it. It's only my own research that makes me believe its epilepsy. My GP and the consultant would not make any diagnosis.

Not thst I suffer from epilepsy, but a tablet I am on for diabetes nephrology in my legs and feet which is nerve related noticed the tablet which works fairly well is main for epileptic sufferers as it works on the nerve sensors in the brain hope you can get a solution to your problem

 

[Chozz]

Not thst I suffer from epilepsy, but a tablet I am on for diabetes nephrology in my legs and feet which is nerve related noticed the tablet which works fairly well is main for epileptic sufferers as it works on the nerve sensors in the brain hope you can get a solution to your problem

Do you take that daily or just when symptoms appear? If they do prescribe something I'd rather just the latter. It's so sporadic that it would seem overkill to take tablets on a regular basis.

 

[Joey66]

Do you take that daily or just when symptoms appear? If they do prescribe something I'd rather just the latter. It's so sporadic that it would seem overkill to take tablets on a regular basis.

Daily 3x a day that's a low dose.
There will be other medications out there depending on symptoms hence see a GP asap you can't carry on as you are?

 

[hibbo'sclass]

In old terminology sounds like petit mal - grand mal breakdancer myself, but pretty well controlled with epilim.
Had some "interesting" experiences over the years, but still here.